February 28 Rare Disease Day
This year, 'Rare Diseases Day' is celebrated by the Institute of Public Health and Chronic Diseases - The Health Institutes of Turkey (TUSEB-TUHKE)
Orphanet-TR Activities in 2020 Were Presented as a Poster at the Orphanet Annual Meeting
Orphanet-TR coordinators, professor Ilhan Satman MD (President, TUSEB- TUHKE ), professor Ugur Ozbek MD (Acıbadem Mehmet Ali Aydınlar University Faculty of Medicine)
'The Status of Chronic Obstructive Pulmonary Disease in Turkey and A Guide for the National Standards of the Prevention, Diagnosis, and Treatment' Has Been Published
'The Status of Chronic Obstructive Pulmonary Disease in Turkey and A Guide for the National Standards of the Prevention, Diagnosis, and Treatment' Has Been Published
COVID-19 Pandemic and Rare Diseases
During the COVID-19 epidemic, which seriously affects our country too, individuals with chronic diseases are among the most vulnerable patient groups including those with rare diseases.
14 Rules Against the Risk of New Coronavirus
Let's follow the "14 Rules Against the Risk of New Coronavirus" published by the Ministry of Health.
Istanbul Undiagnosed and Rare Diseases Solution Platform (ISTisNA) Project Meeting Was Held At Acibadem University
The preparatory meeting of the 'Istanbul Undiagnosed and Rare Diseases Solution Platform (ISTisNA) Project